Friday, March 26, 2010

Update on Ahren

Our doc is working really hard to get this figured out, but he admits this is beyond him. So yesterday he called and consulted with a pediatric neurologist, a pediatric diagnostician and one other specialist. We did ultrasounds of Ahren's entire abdomen, re-ran the urine analysis and checked his blood glucose (which was normal this time, yeah!) We have ruled out strep or other infection, diabetes, tumors, and congenital malformations. On the list are still Renal Tubule Acidosis, Adrenal disorders, Glomerular nephritis, and others.

I talked to the renal department at Texas Childrens and am faxing them all the test results this morning, and then our doc is calling them. We are about a hair away from hospitalization due to the level of metabolic acidosis but right now his kidneys are compensating for it. That's why they are spilling everything. But why is he so acidic? That is the question.

Thanks for all the prayers and ideas. I really appreciate it, more than you can know. I feel like I am always posting some drama around here like some sort of attention junky. Really, I love boredom, I love a good rut, I would love to be searching for something to blog about because there is nothing going on!!!! Again, thank you my friends!

10 comments:

Diana said...

Glad to hear things are at least holding steady and things are being ruled out. Hoping things continue to at least hold steady or improve.

You're not an attention junkie! Give me a break!! You're an awesome mom raising tough kids. Tough kids come with drama...and besides, there's equally if not more drama at my house :-)

Reba said...

I hope the doctors figure out something very soon!

Deb said...

Praying for a diagnosis quickly and for you.

I m so happy to hear that things have "stablized". Calm is good, nothing going on, no drama, not nothing is good. Praying that life resorts to the rut for you soon.

Love and hugs to you all,
Deb

Phyllis said...

Wendy,
Praying that they figure this out quickly. Thanks for keeping us updated.
Phyllis

Donna C said...

Sending prayers that you hear something very soon...glad he is holding his own and doesn't need to be hospitalized...thanks for keeping us posted.

bearie1 said...

Sorry for you, sorry for Ahren. Hope they can figure out what the problem is and you can avoid the hospital. Although in some respects that might be better at this point.

You are not an attention junkie. Elaine

Essie the Accidental Mommy said...

Ok, I could have written that last paragraph myself. In fact, I still might.

FWIW, Ahren sounds a LOT like Genea behaviorally. In the past, she experienced so much stress that her body burned out it's ability to produce stress hormones. She was diagnosed by an endocrinologist and the rest of it is a very long story but she is better now.

Anonymous said...

Ask about diabetes insipidus. It's a form of diabetes but not like type 1 or 2. Call me if you want to. It could still be type 1. 713 855 8432. Stephanie

ManyBlessings said...

Praying so hard Wendy!!!! Give your little man kisses from this mama!

ManyBlessings said...

I forgot to say, my dad has glomerular nephritis. If it does come back as that, PLEASE let me know. He is on a treatment that has not been tried before and doing amazing!

I also wanted to stress the diabetes insipidus. Although it sounds like they mostly have ruled those out.

dawn