tag:blogger.com,1999:blog-30395808.post3734362863335130265..comments2024-03-20T08:53:39.716-05:00Comments on Adopting Ahren (& PBJ, too!): AhrenWendyhttp://www.blogger.com/profile/01618979198068677569noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-30395808.post-42161586891226937412009-09-21T19:32:50.525-05:002009-09-21T19:32:50.525-05:00Wow! Ahren seems like he has a lot in common with ...Wow! Ahren seems like he has a lot in common with my son. Aidan is 2 and was just diagnosed with Hypotonia. He also drools and toe walks 90% of the time. He often falls and constantly has boo boos. We start physical therapy in October. I was worried about CP but the neurologist ruled that out. Aidan is also adopted and had no prenatal care. I will be interested to see what Ahrens doctor says.Kelleyhttps://www.blogger.com/profile/13974960883862580133noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-19763070913864593592009-09-20T07:43:51.217-05:002009-09-20T07:43:51.217-05:00Hmmm, Ataxic CP does seem to fit much better. He i...Hmmm, Ataxic CP does seem to fit much better. He is definitely a smart little cookie and he does charm everyone into doing things for him. I don't have a lot of info about his birth other than he was child #11, no prenatal care and weighed just over 5 pounds at birth. The increased difficulties could easily have to do with his tremendous growth this year. His muscles just need more time to catch up to his body. Did I mention he has grown 6 inches in one year?Wendyhttps://www.blogger.com/profile/01618979198068677569noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-60479408204125408472009-09-19T20:14:19.469-05:002009-09-19T20:14:19.469-05:00Praying for you & Ahren. I wish I could do mor...Praying for you & Ahren. I wish I could do more...Juliehttps://www.blogger.com/profile/09767790792110968918noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-21174691766579960802009-09-19T18:13:00.207-05:002009-09-19T18:13:00.207-05:00Thinking of your wonderful family and hoping you g...Thinking of your wonderful family and hoping you get some answers for that adorable cutie soon!<br /><br />I'm wondering like someone else mentioned here about Ataxic CP? I<br /><br />'m just thinking because he is a larger boy, if his bio mother experienced a difficult birth? When I was a special needs teacher, I had a wonderful little boy in my group for a couple of years who had Ataxic CP and Ahren's symptoms seem spot on to his. This little guy had non-stop drooling but work with the Children's hospital mobile team worked wonders to give him more control. <br /><br />There was certainly nothing affecting his mental faculties and what he couldn't accomplish physically he had quickly learned he could charm his way through anything. (He was really good at getting others to do and get things for him! ;) )<br /><br />Sending you lots of strength as you search for answers, the stress is the hardest thing to handle when you're a parent and one of your kids is not well. <br /><br />Overall I just hope you get some definitive answers!<br /><br />Take care!URBAN BLONDEhttps://www.blogger.com/profile/14873590487554219546noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-20110887117166254702009-09-19T12:41:00.773-05:002009-09-19T12:41:00.773-05:00thinking of you. maya laso had not mauscle tone t...thinking of you. maya laso had not mauscle tone trunk control and didn't sit up, butI moved down to foster her when she was 9 months old so things got turned around. Do you know Natalie? She is friends with Candy. I dont' knwo about the gait problem now but Caleb had so many of the same problems you have mentioned. I met natalie and Caleb on a visit trip, iam almost positive you all know eachother but I get everybodys blogs confused sometimes.Leah Maya Benjaminhttps://www.blogger.com/profile/18167997949670119040noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-50110134372255543642009-09-19T07:31:43.586-05:002009-09-19T07:31:43.586-05:00Melissa, Thanks for the info. We had already ruled...Melissa, Thanks for the info. We had already ruled out a lot of the issues mentioned in that article. The doctor had been leaning towards very mild CP but the drooling and other things are adding a twist to the picture. I am still holding out that he is just a quirky little guy!Wendyhttps://www.blogger.com/profile/01618979198068677569noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-45429271012135968232009-09-18T22:16:48.228-05:002009-09-18T22:16:48.228-05:00I'm so sorry to hear that, Wendy. Does he have...I'm so sorry to hear that, Wendy. Does he have tremor? Wondering about ataxic CP. :( But praying it's absolutely nothing and that the progress you've made with him just continues to resolve all his issues. Hugs.sarah besshttps://www.blogger.com/profile/08657824655713557099noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-86568536481215869232009-09-18T21:53:34.172-05:002009-09-18T21:53:34.172-05:00(((((((((HUGS)))))))))))
From a mommy of a Perfec...(((((((((HUGS)))))))))))<br /><br />From a mommy of a Perfect baby to another mommy of a Perfect baby...<br /><br />Perfectness is in the eye of the beholder...<br /><br />I see nothing but Perfectness, with a little attitude... <br /><br />Hang in there, you have my number if you want to talk... I know these few weeks will be like a lifetime... <br /><br />Trust me I know... I had to wait 6 weeks for results from a blood test Angelena took in May. 6 very long weeks... To find out, I have a perfect little girl, with perfect little flaws that I wouldn't change for anything....<br /><br />HUGS<br />LUV U<br /><br />Ellie.Elliehttps://www.blogger.com/profile/13884130960412925990noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-22708734794228659632009-09-18T21:42:58.717-05:002009-09-18T21:42:58.717-05:00Wendy-
I am certainly praying for Ahren and you. ...Wendy-<br /><br />I am certainly praying for Ahren and you. What a long wait to have the testing done. <br /><br />Love and hugs,<br />DebDebhttps://www.blogger.com/profile/13944684168511187765noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-16937901720228940222009-09-18T18:28:58.021-05:002009-09-18T18:28:58.021-05:00I found the link:
http://www.umm.edu/ency/article...I found the link:<br /><br />http://www.umm.edu/ency/article/003298.htmAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30395808.post-50845887118548771522009-09-18T18:26:45.621-05:002009-09-18T18:26:45.621-05:00I was looking up excessive drooling, which my Gaut...I was looking up excessive drooling, which my Gautemalan daughter does she's two, and I came across this:<br />Google Hypotonia - I lost the page link:<br /><br />Hypotonia - Overview<br />Overview<br />Treatment<br />All Information<br />Alternative Names<br />Decreased muscle tone; Floppy infant<br /><br />Definition of Hypotonia:<br />Hypotonia is decreased muscle tone.<br /><br />Considerations:<br />Hypotonia is often a sign of a worrisome problem. It may be a sign of a central nervous system problem, genetic disorder, or muscle disorder.<br /><br />It can affect children or adults.<br /><br />Infants with hypotonia seem floppy and feel like a "rag doll" does when held. They rest with their elbows and knees loosely extended, while infants with normal tone tend to have flexed elbows and knees. Head control may be poor or absent, with the head falling to the side, backward, or forward.<br /><br />Infants with normal tone can be lifted with the parent's hands placed under the armpits, while hypotonic infants tend to slip between the hands as the infant's arms rise unresistingly upward.<br /><br />Common Causes:<br />Achondroplasia<br />Aicardi syndrome<br />Canavan disease<br />Congenital hypothyroidism<br />Congenital cerebellar ataxia<br />Down syndrome<br />Familial dysautonomia (Riley-Day syndrome)<br />Hypervitaminosis<br />Infant botulism<br />Kernicterus (brain damage due to severe jaundice)<br />Klinefelter syndrome<br />Krabbe disease<br />Marfan syndrome<br />Menkes syndrome<br />Metachromatic leukodystrophy<br />Methylmalonic acidemia<br />Muscular dystrophy<br />Myasthenia gravis<br />Myotonic dystrophy (a type of muscular dystrophy)<br />Phelan-McDermid syndrome (Deletion 22q13 syndrome)<br />Prader-Willi syndrome<br />Rickets<br />Sepsis<br />Spinal muscular atrophy type 1 (Werdnig- Hoffman)<br />Tay-Sachs disease<br />Trisomy 13<br />Vaccine reaction<br /><br />Hypotonia<br /><br /><br />Central nervous system<br /><br />Reviewed last on: 11/9/2007<br />Deirdre O’Reilly, M.D., M.P.H., Neonatologist, Division of Newborn Medicine, Children’s Hospital Boston and Instructor in Pediatrics, Harvard Medical School, Boston, Massachusetts.<br />References<br />Yeh PC, Kipp MA. A case of Moebius syndrome in association with Klinefelter syndrome. Ophthalmic Genet. 2002 Sep;23(3):185-9.<br /><br />The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed medical professional should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only -- they do not constitute endorsements of those other sites. © 1997- 2009 A.D.A.M., Inc. Any duplication or distribution of the information contained herein is strictly prohibited.<br /><br />MelissaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30395808.post-39828565872525532392009-09-18T17:28:00.451-05:002009-09-18T17:28:00.451-05:00Oh geeeeeez, what a hard thing! I hope it is that ...Oh geeeeeez, what a hard thing! I hope it is that he is still catching up. I can tell you this though, Genea has similar problems and she is 6. Her mouth hangs open much of the time and her tongue protrudes. She is doing better with that and we remind her as well, she can control it when she knows to. She has an awkward gait as well and will trip over the flowers in the carpeting especially when she is stressed, and often toe-walks. Come to think of it, she is also very stiff when she first wakes up. She is very stiff when she sleeps, and if I need to move her when she is sleeping sometimes her body stays in the shape even while I am moving her, like it is frozen. <br />Maybe I should take her to the doctor! I was chalking it up to slow/ delayed physical development combined with ultra-rapid growth (11 inches in 12 months!). She has had tons of medical testing done though, from when she had Failure To Thrive. Nothing was found then.<br />Please keep us updated!The Accidental Mommyhttps://www.blogger.com/profile/00409271721074309249noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-80335589518883717062009-09-18T17:19:50.269-05:002009-09-18T17:19:50.269-05:00Oh Wendy...please know I will be praying. Love tha...Oh Wendy...please know I will be praying. Love that little guy!Dawnhttps://www.blogger.com/profile/01198082344456465490noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-46052865003398371132009-09-18T16:33:55.590-05:002009-09-18T16:33:55.590-05:00Oh Wendy...
Praying for you and your little man.
...Oh Wendy...<br /><br />Praying for you and your little man.<br /><br />That's a kick in the gut. <br /><br />Heavenly Father,<br />Today I lift up Ahren to You. You created him and You know everything about him. I pray You would give the doctors wisdom and knowledge to understand what is going on. I pray the tests would be accurate and that they get to the bottom of this. Lord, as Wendy waits out these few weeks, I pray that You would hold her close and calm her nerves. I pray that You would give her strength and encouragement. May You be in this. Please take care of little Ahren. In Jesus name. Amen. <br /><br />Much love,<br />JulieMamita Jhttps://www.blogger.com/profile/15008835660518360884noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-66513979009800416702009-09-18T14:38:54.405-05:002009-09-18T14:38:54.405-05:00Wow! Didn't see that one coming. Hopefully t...Wow! Didn't see that one coming. Hopefully they can find out what is really going on so they can help your adorable little man.Dianahttps://www.blogger.com/profile/08444891084585965661noreply@blogger.comtag:blogger.com,1999:blog-30395808.post-76449091269741681412009-09-18T14:23:43.206-05:002009-09-18T14:23:43.206-05:00Please let us know when you findout more. Will be...Please let us know when you findout more. Will be praying in the meantime.Angiehttps://www.blogger.com/profile/05328637070950887401noreply@blogger.com